Once a month RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participating in the calls does not imply support for any of the policy proposals or legislation that are discussed or promoted at meetings.
2019 RDLA Call Schedule:
- January 17th: Monthly Legislative Webinar
- February 14th: Rare Disease Week on Capitol Hill Webinar
- February 21st: Rare Disease Week on Capitol Hill Team Leaders Webinar
- March 21st: Monthly Legislative Webinar
- April 11th: Monthly Legislative Webinar
- May 9th: Monthly Legislative Webinar
- June 13th: Monthly Legislative Webinar
- September 12th: Monthly Legislative Webinar
- October 17th: Monthly Legislative Webinar
- November 21st: Monthly Legislative Webinar
2018 RDLA Call Schedule:
- January 24th: Monthly Legislative Webinar
- February 15th: Rare Disease Week on Capitol Hill Webinar
- March 21st: Monthly Legislative Webinar
- October 17th: Monthly Legislative Webinar
- November 14th: Monthly Legislative Webinar
- December 12th: Informational Webinar on Rare Disease Week on Capitol Hill 2019
2017 RDLA Call Schedule:
- February 1st: Monthly Legislative Meeting
- February 8th: Rare Disease Week on Capitol Hill 2017 Webinar
- March 15th: Monthly Legislative Meeting
- April 19th: Monthly Legislative Meeting
- May 17th: Monthly Legislative Meeting
- June 14th: Monthly Legislative Meeting
- July 19th: Monthly Legislative Meeting
- September 20th: Monthly Legislative Meeting
- November 14th: Monthly Legislative Meeting
- December 6th: Informational Webinar on Rare Disease Week on Capitol Hill 2018
2016 RDLA Call Schedule:
- January 20th: Rare Disease Week Webinar #1
- January 21st: Monthly Legislative Meeting
- February 17th: Monthly Legislative Meeting
- February 23rd: Rare Disease Week Webinar #2
- March 23rd: Monthly Legislative Meeting
- April 20th: Monthly Legislative Meeting
- May 17th: Monthly Legislative Meeting
- June 16th: Legislative Conference & In-District Lobby Days Webinar
- June 22nd: Monthly Legislative Meeting
- July 23rd: In-Depth In-District Lobby Days Webinar
- August 10th: Monthly Legislative Meeting
- September 14th: Monthly Legislative Meeting
- October 26th: Monthly Legislative Meeting
- November 30th: Monthly Legislative Meeting
- December 14th: Monthly Legislative Meeting
2015 RDLA Calls:
Click for agendas and PowerPoint presentations
- January 28th: Rare Disease Day Webinar #1
- February 18th: Rare Disease Day Webinar #2
- March 25th: Monthly Legislative Meeting
- April 22nd: Monthly Legislative Meeting
- May 20th: Monthly Legislative Meeting
- June 17th: Monthly Legislative Meeting
- July 8th: In-District Lobby Days Webinar#1
- August 5th: In-District Lobby Days Webinar#2
- September 16th: Monthly Legislative Meeting
- October 14th: Monthly Legislative Meeting
- November 18th: Monthly Legislative Meeting (slides) –Agenda
- December 16th: Monthly Legislative Meeting
