Rare Disease Week on Capitol Hill [2019] Christina Hartman Dr. Alan Beggs Lakia Bailey, PhD. Christina Frigo Elizabeth Jalazo, MD Julie Sapp, ScM, CGC Paul Melmeyer, MPP Marina Cuchel, MD, PhD Emil Kakkis, MD, PhD Debra Lewis, OD, MBA Patricia Furlong, Parent Project Muscular Dystrophy Seth Rotberg, Rare Disease Advocate Christine Brown, National PKU Alliance Kenneth Fischbeck, MD Louise Vetter, Huntington's Disease Monica Weldon, SYNGAP 1 Frank Sasinowski, MS, MPH, JD | FDA Center of Excellence for Rare Diseases Potential Model 1/18 Next» By PoseLab Show more videos»
