Urge Legislators to Attend Rare Disease Caucus Briefing on September 11th

On September 11th, RDLA in coordination with the Rare Disease Congressional Caucus will host a briefing on “The Importance of the Newborn Screening Saves Lives Act”. This event will brief Members of Congress and staff on the importance of newborn screening programs and the impact of newborn screening on American’s lives.

CLICK HERE to email or phone your legislators and urge them to send staff to the event!

You can find out more about the event here or contact Shannon at the EveryLife Foundation at svonfelden@everylifefoundation.org.