We are excited to welcome rare disease advocates from across the country to Rare Disease Week on Capitol Hill 2020 in Washington, DC from February 25-28, 2020! Rare Disease Week on Capitol Hill brings rare disease community members together to learn about federal legislative issues, meet other advocates, and share their rare stories with legislators.
The travel stipend application for Rare Disease Week on Capitol Hill 2020 is now open! Please find the application here.
In order to enable more advocates to attend, the EveryLife Foundation will offer a limited number of travel stipends. Stipend awardees in Maryland and Virginia will receive $400; awardees in Alaska, Hawaii, North Dakota, and Puerto Rico will receive $1000; and awardees from the other 45 states will receive $800.
Stipend recipients are required to attend the Legislative Conference on February 26th and the Hill Day on February 27th but may attend the other events as well. Only one person from a family can be awarded a travel stipend.
The Application deadline to apply for a Rare Disease Week on Capitol Hill 2020 Travel Stipend is December 2nd, 2019. All advocates that apply will be notified by December 20th, 2019.
*Any young adult under the age of 18 who receives a travel stipend must travel with an adult chaperone.
For more information on the events during Rare Disease Week on Capitol Hill 2020, please visit www.rareadvocates.org/rdw.