1.) Learn about policy issues that impact you at the Legislative Conference.
2.) Share your unique story with members of Congress during Lobby Day, which is kicked off at our Lobby Day Breakfast.
4.) Attend an exclusive policy briefing with the Rare Disease Congressional Caucus.
5.) Join the next generation of advocacy leaders at the Young Adult Meetup.
Don’t miss out! Register Today!
Rare Disease Week on Capitol Hill 2019 takes place from February 24th to the 28th.
Please note that Rare Disease Week on Capitol Hill will NOT be impacted by the partial government shutdown.
All events are free for patients, caregivers and advocates.