The Lymphedema Advocacy Group is asking advocates to contact their Senators and Representative to cosponsor the Lymphedema Treatment Act, S.518/H.R.1948. Primary (congenital) lymphedema is associated with over 40 rare diseases. Secondary (acquired) lymphedema results when the lymphatic system is permanently damaged and has numerous causes including surgery, trauma, radiation, and severe infections.
Currently, the compression garments and supplies that are the cornerstone of treatment and management for this chronic condition are not covered by many insurance plans. Passage of the Lymphedema Treatment Act will ensure that patients have access to their doctor prescribed medical compression supplies and are able to lead full and productive lives.