Rare Disease Week on Capitol Hill Was a Huge Success!
Thanks for playing your part in such a monumental week! Over the next few months we will start to see the positive outcomes of all our hard work, as rare disease legislation makes its way through The Congress.
View presentations and photos from this year’s Rare Disease Legislative Conference and all the other events below!
Monday, February 23rd
Rare Disease Documentary Screening and Cocktail Reception
@ Carnegie Institution for Science
Documentary Screening featuring the film “RARE”rarefilm.org presented by
Tuesday, February 24th
@ FHI 360
Wednesday, February 25th
Lobby Day Breakfast
@ Women’s Democratic Club
Rare Disease Lobby Day
@ U.S. Senate and House Office Buildings
9:00 am – 5:00 pm Meetings with your elected officials
Thursday, February 26th
Rare Disease Congressional Caucus Briefing
@ U.S. Capitol Visitor Center
12:00 pm – 1:00 pm
Rare Artist Reception
5:00 pm – 7:00 pm
Friday, February 27th
Rare Disease Day at the NIH
@ NIH Campus
Advocates: Please take a moment to fill out our quick survey regarding your conference experience. Your feedback is critical in our ongoing effort to improve this annual event. Thank you again for being part of such a wonderful conference experience!