Sign-on to Thank Reps. Upton & DeGette for their Leadership

Rare disease groups are circulating an organizational sign-on letter to thank Chairman Upton (R-MI) and Representative DeGette (D-CO) for leading the 21st Century Cures Initiative, and for incorporating the patient voice. To date, over 40 organizations have signed, including: the EveryLife Foundation, Global Genes, Parent Project Muscular Dystrophy, and the Sarcoma Foundation of America. View the sign-on letter here and email mbronstein@everylifefoundation.org to get signed-on. Please share with your networks so we can send a strong message to Congress!