Sign-On to Support the OPEN ACT

The EveryLife Foundation for Rare Diseases is asking patient organizations to sign-on in support of the OPEN ACT, legislation that could help double the number of treatments for rare diseases. Already, 173 national patient organizations have signed-on to support this life-saving legislation. Click here to add your organization’s name to the list. For additional background on the OPEN ACT, and to see a list of the signing organizations click here.