The EveryLife Foundation for Rare Diseases is asking patient organizations to sign-on in support of the OPEN ACT, legislation that could help double the number of treatments for rare diseases. Already, 173 national patient organizations have signed-on to support this life-saving legislation. Click here to add your organization’s name to the list. For additional background on the OPEN ACT, and to see a list of the signing organizations click here.
https://rareadvocates.org/wp-content/uploads/2016/04/in-person-white.png 270 800 Grant Kerber https://rareadvocates.org/wp-content/uploads/2016/05/rdla-blue-300x126.png Grant Kerber2016-12-08 17:26:202016-12-08 18:21:40Sign-On to Support the OPEN ACT