CMS Letter to Ensure Patients with Chronic Disease Have Access to Treatments

The AIDS Institute, Epilepsy Foundation, and National Alliance on Mental Illness is asking organizations to sign on to a letter to the Centers for Medicare & Medicaid Services (CMS) to ensure patients with chronic diseases have access to affordable treatments.  If your organization would like to sign onto the letter, please fill out this form by COB Thursday, July 24th

Letter Summary:


Over the past couple of years, hundreds of patient groups and their allies have joined together in the “I Am Essential” campaign to ensure that the patient community voice was heard as the Essential Health Benefits were developed, along with the Qualified Health Plans and Expanded Medicaid Benefits.  Now that we have had some time to monitor implementation of the ACA, it appears that there are some common concerns that we continue to hear from patients – especially those with chronic conditions – that need to be addressed in the Health Insurance Marketplace.

Therefore, we have reconstituted our campaign, and rebranded it as “I Am (Still) Essential.”   As a first step, we drafted the attached letter to HHS Secretary Sylvia Matthews Burwell asking her to look into three main issues: 1) Limited Benefits; 2) High Cost-Sharing; and 3) Transparency and Uniformity.

In the letter we ask the Secretary to enforce the ACA non-discrimination provisions, prohibit restrictive formularies and inadequate provider networks; address high cost-sharing, including inappropriate use of coinsurance; and improve plan transparency so that consumers can make informed decisions.

If your organization would like to sign onto the letter, please fill out this form by COB Thursday, July 24th.

Read the full letter here: I Am Still Essential

Please feel free to distribute this letter to your networks.

Thank you.

Beatriz Duque Long, Director, Health Policy & Advocacy, Epilepsy Foundation

Carl Schmid, Deputy Executive Director, The AIDS Institute

Andrew Sperling, Director of Federal Legislative Advocacy, National Alliance on Mental Illness