Scenes from a Successful RareVoice Awards Event
Thank you to all who attended and supported our sixth annual RareVoice Awards. You helped us celebrate rare disease advocates who made an impact at state and federal levels. Enjoy photos from the event on our Facebook page and plan to join us February 25 through March 1, 2018 for Rare Disease Week on Capitol Hill.
Congratulations to our 2017 award recipients:
Senator Amy Klobuchar
Congressional Leadership RareVoice Award
Representative Leonard Lance
Congressional Leadership RareVoice Award
Senator Patty Murray
Congressional Leadership RareVoice Award
Remy Brim, Senate HELP Committee, Ranking Member Patty Murray
Congressional Staff RareVoice Award
Polly Webster, Office of Representative Diana DeGette
Congressional Staff RareVoice Award
Paul Fogelberg, Patient Advocate and Director, Pulmonary Fibrosis Advocates
Federal Patient Advocacy RareVoice Award
Emily Muller, Founder, Emily’s Fight
Federal Teen Advocacy RareVoice Award
Shira Strongin, Founder, Sick Chicks
Federal Teen Advocacy RareVoice Award
Becky Ruth, Member, Missouri State House of Representatives
State Legislator RareVoice Award
Darlene Shelton, Founder and President, Danny’s Dose
State Patient Advocacy RareVoice Award
Taylor Kane, Lead Advocate, Run for ALD
State Teen Advocacy RareVoice Award
Thank you to our sponsors for making this event possible!