RDLA prepares policy primers for advocates to learn more about important policy issues that impact the rare disease community. The policy primers are designed to help advocates better understand different policy issues and empower the advocacy of rare disease advocates. If there is a policy issue you would like to learn more about, please contact Shannon at firstname.lastname@example.org.
- RDLA Policy Primer: 21st Century Cures Act and Cures 2.0
- RDLA Policy Primer: Prescription Drug User Fee Act (PDUFA)
- RDLA Policy Primer: Value Assessment Frameworks
- RDLA Policy Primer: Affordable Care Act