RDLA Opens 2020 RareVoice Award Nominations

The RareVoice Awards nominations for 2020 are now open. We encourage the community to nominate individuals and organizations who have gone above and beyond to become rare disease policy leaders, having passed or supported legislation for the rare disease community at the state and federal level. There is even a category for teenagers/young adults who have made a big impact. This year we introduce a new awards category called Artist-to-Advocate. This category is designed to recognize individuals who have utilized their artwork to advocate for federal or state legislation.


The 2020 RareVoice Awards categories are:

Federal Advocacy—Congressional Staff

Federal Advocacy—Patient/Organization

State Advocacy—State Legislator

State Advocacy—Patient/Organization

Federal or State Advocacy by a Teenager



The RareVoice Awards nominations will close on Tuesday, September 8th. Please submit your nominees for the RareVoice Awards at www.rareadvocates.org/rarevoice-awards.


The RareVoice Awards celebration will take place on December 10, 2020 at 7:00 p.m. ET to honor advocates who give rare disease patients a voice on Capitol Hill. 2020 marks the 9th year of the RareVoice Awards, which will be held virtually.


Award recipients are chosen by committee from nominations received from the rare disease community. Awardees receive an “Abbey” statuette commissioned specially for the RareVoice Awards, and named for Abbey Meyers, founder of the National Organization for Rare Disorders (NORD). This is a free and widely attended event.


If you have any questions about the RareVoice Awards, please contact Shannon von Felden, RDLA Program Director, at svonfelden@everylifefoundation.org.