Rare Disease Legislative Advocates is pleased to invite you to the Eighth Annual RareVoice Awards

Wednesday, December 4, 2019

6:00 p.m. Cocktail Receptionartboard-1 7:30 p.m. Congressional Toastartboard-1 8:00 p.m. Awards Ceremony
artboard-1 9:00 p.m. After Party Celebration

Arena Stage artboard-1 1101 6th Street, SW artboard-1 Washington, DC

Complimentary Valet artboard-1 Business or Formal Attire

This is a free and widely attended event

The RareVoice Awards is an annual celebration to honor advocates who give rare disease patients a voice on Capitol Hill. Patient advocates, industry executives, and Congressional and government agency staff gather to honor these outstanding advocates for the rare disease community. 2019 will mark the 8th year of the RareVoice Awards, which will be held December 4th at the Arena Stage in Washington, DC.

Award recipients are chosen by committee from nominations received from the rare disease community. Awardees receive an “Abbey” statuette commissioned specially for the RareVoice Awards, and named for Abbey Meyers, founder of the National Organization for Rare Disorders (NORD). The event will be held December 4, 2019 at the Arena Stage in Washington, DC. This is a free and widely attended event.


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Nominations are open for the 8th Annual RareVoice Awards

We encourage the community to nominate individuals and organizations who have gone above and beyond to become rare disease policy leaders, having passed or supported legislation for the rare disease community at the state and federal level, including a category for teenagers.

On December 4, 2019, the RareVoice Awards celebration will honor advocates who give rare disease patients a voice on Capitol Hill and in state government.

Nominations will close on August 30th.

  • Nominators will remain anonymous.
  • Please include links to news articles, blogposts, Youtube videos or other materials that will help the Nominations Committee get a deeper understanding of the nominee’s accomplishments.

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Proceeds Fund

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For more information or sponsorship inquiries, email Carol Kennedy at ckennedy@everylifefoundation.org

#RAREVOICE

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