2020 RareVoice Award Categories
Federal Advocacy – Congressional Staff
Honors congressional staffers who have worked to create and enact policies for the rare disease community
Federal Advocacy – Patient/Organization
Honors advocates or organizations that have worked to create and pass federal legislation
State Advocacy – State Legislator
Honors state legislators who have worked to create and enact policies for the rare disease community
State Advocacy – Patient/Organization
Honors advocates or organizations that have worked to create and pass state legislation
Federal or State Advocacy by a Teenager
Honors teen advocates that have advocated for state or federal legislation
Honors individuals who have utilized their artwork to advocate for federal or state legislation
Award recipients are chosen by committee from nominations received from the rare disease community. Awardees receive an “Abbey” statuette commissioned specially for the RareVoice Awards, and named for Abbey Meyers, founder of the National Organization for Rare Disorders (NORD).
Thank you to the RareVoice Nominations Committee
Jennifer Bernstein, Horizon Government Affairs
David Eckstein, Office of Clinical Research, NIH
Sarah Lloyd Stevenson, Faegre Drinker
Lisa Schill, RASopathies Network
Kathleen Tighe, Sanofi Genzyme
Shayne Woods, Office of Rep. Bilirakis
2020 RareVoice Award Sponsorship Opportunities
All sponsorships are tax deductible and support the advocacy of all rare disease patients and organizations through RDLA programs such as Rare Across America, Rare Giving and the Young Adult Representatives of RDLA.
RareVoice Award sponsorships start at $7,500 and space is limited. Please contact Ted Brasfield at email@example.com or Elissa Taylor at firstname.lastname@example.org to discuss how we can partner with you on this impactful event.