The 9th Annual RareVoice Awards
Thursday, December 10th, 2020 ~ 7:00 p.m. ET

Join us from home as we celebrate advocates who give rare disease patients a voice on Capitol Hill and in state government. The event is free and open to the public.

RDLA believes that every voice matters and that patients are the key to changing public policy. Thank you to all rare disease advocates who make their voices heard year-round and continue to advance policies that benefit the rare disease community.

Update: Nominations are now closed. Finalists for each category will be announced in October. The awardee for each category will be announced live at the RareVoie Awards on December 10th.

2020 RareVoice Award Categories

Federal Advocacy – Congressional Staff
Honors congressional staffers who have worked to create and enact policies for the rare disease community

Federal Advocacy – Patient/Organization
Honors advocates or organizations that have worked to create and pass federal legislation

State Advocacy – State Legislator
Honors state legislators who have worked to create and enact policies for the rare disease community

State Advocacy – Patient/Organization
Honors advocates or organizations that have worked to create and pass state legislation

Federal or State Advocacy by a Teenager
Honors teen advocates that have advocated for state or federal legislation

Artist-to-Advocate
Honors individuals who have utilized their artwork to advocate for federal or state legislation

The Abbey

Award recipients are chosen by committee from nominations received from the rare disease community. Awardees receive an “Abbey” statuette commissioned specially for the RareVoice Awards, and named for Abbey Meyers, founder of the National Organization for Rare Disorders (NORD).

Thank you to the RareVoice Nominations Committee

Jennifer Bernstein, Horizon Government Affairs
David Eckstein, Office of Clinical Research, NIH
Sarah Lloyd Stevenson, Faegre Drinker
Lisa Schill, RASopathies Network
Kathleen Tighe, Sanofi Genzyme
Shayne Woods, Office of Rep. Bilirakis

2020 RareVoice Award Sponsorship Opportunities

All sponsorships are tax deductible and support the advocacy of all rare disease patients and organizations through RDLA programs such as Rare Across America, Rare Giving and the Young Adult Representatives of RDLA.

RareVoice Award sponsorships start at $7,500 and space is limited. Please contact Ted Brasfield at tbrasfield@everylifefoundation.org or Elissa Taylor at etaylor@everylifefoundation.org to discuss how we can partner with you on this impactful event.