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A Program of the EveryLife Foundation for Rare Diseases
Rare Across America
Rare Disease Week on Capitol Hill
Fast Forward for RARE
2020 RareVoice Awards
RareVoice Award Recipients
2020 RareVoice Award Nominations Open through September 8th
Federal Advocacy - Congressional Staff: Honors congressional staffers who have worked to create and enact policies for the rare disease community
Federal Advocacy - Patient/Organization: Honors advocates or organizations that have worked to create and pass federal legislation
State Advocacy - State Legislator: Honors state legislators who have worked to create and enact policies for the rare disease community
State Advocacy - Patient/Organization: Honors advocates or organizations that have worked to create and pass state legislation
Federal or State Advocacy by a Teenager: Honors teen advocates that have advocated for state or federal legislation
Artist-to-Advocate: Honors individuals who have utilized their artwork to advocate for federal or state legislation
Nominee Address (if available)
State / Province / Region
ZIP / Postal Code
Nominee Email Address
Nominators will remain anonymous.
What specific legislation or policies were impacted by the nominee? Please be specific. (Include the bill number, name of the legislation, whether the bill passed the House and/or Senate or state legislature, whether the bill was signed into law by the Governor or President, and dates if possible.)
Please explain how the policy or legislation advocated by the nominee was important to the rare disease community.
For the Artist-to-Advocate Category ONLY: Tell us how the nominee used the medium of art to further their rare disease advocacy work.
What is your relationship to the nominee?
Are there websites or news articles with relevant information on the nominee's accomplishments? If so, please list them below.
Please include links to news articles, blogposts, Youtube videos or other materials that will help the Nominations Committee get a deeper understanding of the nominee’s accomplishments.
Your Organization / Disease Affiliation
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