RareVoice Awards Nominations Closing Soon

The RareVoice Awards nominations for 2019 are open! We encourage the community to nominate individuals and organizations who have gone above and beyond to become rare disease policy leaders, having passed or supported legislation for the rare disease community at the state and federal level. There is even a category for teenagers/young adults who have made a big impact.

The RareVoice Awards nominations will close on Friday, August 30th. Please submit your nominees for the RareVoice Awards at www.rareadvocates.org/rarevoice-awards.

The RareVoice Awards celebration will take place on December 4, 2019 to honor advocates who give rare disease patients a voice on Capitol Hill. Patient advocates, industry executives, and Congressional and government agency staff gather to honor these outstanding advocates for the rare disease community. 2019 will mark the 8th year of the RareVoice Awards, which will be held at the Arena Stage in Washington, DC.

Award recipients are chosen by committee from nominations received from the rare disease community. Awardees receive an “Abbey” statuette commissioned specially for the RareVoice Awards, and named for Abbey Meyers, founder of the National Organization for Rare Disorders (NORD). This is a free and widely attended event.

If you have any questions about the RareVoice Awards, please contact Shannon at svonfelden@everylifefoundation.org.