2019 RareVoice Awardees

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Hon. Lucille Roybal- Allard, Congressional Leadership
Hon Roger Wicker, Congressional Leadership
Debbie Jessup, Congressional Staff
Shayne Woods, Congressional Staff
Isabel Bueso, Federal Advocacy
Nikia Vaughan, State Advocacy
Aidan Abbott, Teen Advocacy
Dr. Emil Kakkis, Lifetime Achievement

Read more about the 2019 RareVoice Awards

View the photos and videos from the 2019 RareVoice Awards

View the 2019 RareVoice program booklet

2018 RareVoice Awardees

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Hon. Cathy McMorris Rodgers, Congressional Leadership
Hon. Jackie Speier, Congressional Leadership
Thomas Rice, Congressional Staff
Danielle Leach, Federal Agency
Rob Bonta, State Legislator
Angela Ramirez Holmes, State Advocacy
Brian Maienschein, State Legislator
Sadie Keller, Federal Teen Advocacy

2017 RareVoice Awardees

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Hon. Amy Klobuchar, Congressional Leadership
Hon. Leonard Lance, Congressional Leadership
Remy Brim , Congressional Staff
Polly Webster, Congressional Staff
Paul Fogelberg, Federal Patient Advocacy
Darlene Shelton, State Patient Advocacy
Becky Ruth, State Legislator
Taylor Kane, State Teen Advocacy
Emily Muller, Federal Teen Advocacy
Shira Strongin, Federal Teen Advocacy

2016 RareVoice Awardees

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Hon. Joseph Crowley, Congressional Leadership
Hon. Orrin Hatch, Congressional Leadership
Grace Stunz ,Congressional Staff
John Gallin, Federal Agency
David Fajgenbaum, Federal Patient Advocacy
Gina Szajnuk, State Patient Advocacy
Sabrina Low-Dumond, State Patient Advocacy
Richard Pan, State Legislator
Ronald Bartek, Lifetime Achievement
Hon. Orrin Hatch, Lifetime Achievement

2015 RareVoice Awardees

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Hon. Gus Bilirakis, Congressional Leadership
Hon. GK Butterfield, Congressional Leadership
Hon. Diana DeGette, Congressional Leadership
Saul Hernandez, Congressional Staff
Clay Alspach, Congressional Staff
Patricia Weltin, State Patient Advocacy
Stephen Groft, Federal Agency
Lisa & Max Schill, Federal Patient Advocacy
Hon. Fred Upton, Lifetime Achievement

2014 RareVoice Awardees

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Hon, Doris Matsui, Congressional Leadership
Cheryl Jaeger, Congressional Staff
William A. Gahl, Lifetime Achievement
Allen E. Guttmacher, Federal Agency
Gabriella Miller, Federal Patient Advocacy
National Down Syndrome Society, Federal Patient Advocacy
Jeff Leider, State Patient Advocacy
Jonny Lee Miller, Special Presentation/Patient Advocate

2013 RareVoice Awardees

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Hon. Michael Burgees, Congressional Leadership
Hon, Ileana Ros-Lehtinen, Congressional Leadership
Hon. David McKinley, Congressional Leadership
Art Estopinan, Congressional Staff
Janet Woodcock, Federal Agency
John F. Crowley, Special Presentation/Patient Advocate
Patricia Furlong, Lifetime Achievement

2012 RareVoice Awardees

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Hon. Michael McCall, Congressional Leadership
Hon. Cliff Stearns, Congressional Leadership
Thomas Power, Congressional Staff
Emily Shetty, Congressional Staff
Andy Taylor, Congressional Staff
Nancy Goodman, Federal Patient Advocacy
Roy Zeighami, Federal Patient Advocacy
Mark Dant, Special Presentation/Patient Advocate
Abbey Meyers, Lifetime Achievement