Make an impact on federal policy close to your home.
Share your rare disease story.
Meet other rare disease advocates.
Registration closed on July 3rd. Contact Shannon at firstname.lastname@example.org if you have any questions.
July 29 – September 8, 2019
(Registration is open from May 8 through July 3)
The local offices of your Members of Congress
Rare Disease Legislative Advocates (RDLA) staff organizes meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. The meetings take place in the Member’s district office during the month of August, while Congress is in recess from July 29th to September 8th, 2019. The RDLA team also helps to prepare advocates for their meetings, providing legislative resource materials and hosting pre-meeting training webinars.
No prior advocacy experience is necessary.
Registration for this event and all RDLA events are free for rare disease advocates.
SAVE THE DATE
Thursday, July 25, 2019 at 2pm – Training webinar to prepare advocates for their meetings. Click here to register.
Resources and materials (Check back for updated materials in late July 2019)
In-District Lobby Days informational webinar (Recording from 2018)
Slides from In-District Lobby Days informational webinar (From 2018)
Sample thank you letter follow up for Congressional meetings
Congressional Scorecards for 115th Congress
Printable Congressional Scorecard
Free toolkit by Global Genes on Building Relationships with Your Representatives
Suggestions on utilizing social media to engage legislators
How to create a legislative one-pager