Rare Disease Orgs Plan National Day of Action to Spur Senate Legislation for Cure


On September 25th, the EveryLife Foundation and Global Genes have planned a national drive to ensure the Senate takes up the recently passed 21st Century Cures legislation from the House.

Motivated by the rallying cry that “Patients Can’t Wait”, both organizations plan to use the Global Genes Patient Advocacy Summit to pump up support and ensure that the Senate moves forward with this important legislation as soon as possible.

For more information on this Day of Action, follow RDLA, Global Genes and the EveryLife Foundation on social media for the latest updates.