Rare Disease Legislative Advocates in coordination with Rare Disease Congressional Caucus Co-Chairs:
Representatives Leonard Lance (R-NJ) and Joe Crowley (D-NY), will host a briefing on:
Precision Medicine: New Frontiers for Rare Diseases
Thursday, November 5th, 2015
12:00 pm – 1:00 pm (lunch provided)
Rayburn House Office Building
Room: B318
Moderator: John Crowley, Parent Advocate and Chairman & CEO, Amicus Therapeutics
- Matt Might, President, NGLY1.org & Associate Professor, University of Utah
- Erynn Gordon, Director of Clinical Development, 23andMe
- John Stone, Counsel, Committee on Energy and Commerce – U.S. House of Representatives
- Dr. Christopher Austin, Director, National Center for Advancing Translational Sciences, NIH
- Sean Sigmon, Business Development Director, Oracle Health Sciences
Limited Seating, RSVP to attend
Can’t attend? Click here to contact your congressional office to ask them to send a representative!
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