Parent Project Muscular Dystrophy (PPMD) is taking the lead on strengthening the voice of the patient throughout the drug and larger medical product development process. They are doing this by urging congress to add transparency requirements in upcoming 21st Century Cures Legislation.
PPMD has written a sign-on letter to urge that a provision known as the Patient-Focused Impact Assessment Act (PFIA) be included in 21st Century Cures draft legislation when released in early 2015.
Read the letter here: PFIA Sign On Letter
If you have any questions, or to sign-on please feel free to contact PPMD or Annie Kennedy with Parent Project Muscular Dystrophy firstname.lastname@example.org