October 17, 2018: RDLA Monthly Meeting

RDLA’s October Legislative Webinar and In-Person Meeting
Wednesday, October 17th
12:00 pm to 1:00 pm ET

  1. New Opioid Law, Joel White, President, Horizon Government Affairs
  2. The Ensuring Lasting Smiles Act, Kathleen Laird, Senior Health Policy Advisor, Senator Tammy Baldwin and Becky Abbott, National Foundation for Ectodermal Dysplasias
  3. The Lymphedema Treatment Act Update, Patricia Egan, Lymphedema Advocacy Group
  4. 2018 Midterm Elections and End-of-Year Legislation, Rebecca Adams, CQ
  5. Rare Disease Week on Capitol Hill 2019, Shannon von Felden, Program Manager, RDLA, EveryLife Foundation


Once a month, RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participation does not imply support for any of the policy proposals or legislation that are discussed or promoted.