Monthly Meetings

Join us for our next Legislative Webinar on Tuesday, May 17th, 2016

Click here to register!


Once a month RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participating in the calls does not imply support for any of the policy proposals or legislation that are discussed or promoted at meetings.

2016 RDLA Call Schedule:

2015 RDLA Calls: click for agendas and PowerPoint presentations

2014 RDLA Calls: click for agendas and PowerPoint presentations