May RDLA Luncheon & Conference Call

Advocates Luncheon & Conference Call
Tuesday, May 14, 2013

Agenda Includes:

  • Achieving a Better Life Experience (ABLE) Act of 2013 (S. 313/H.R.647)
  • Medicare Part B – Ensure Medicare payments for providers of drugs and biologics
  • Orphan Drug Tax Credit patient sign on letter
  • Patients’ Access to Treatments Act (PATA) (H.R. 460)
  • Newborn Screening Saves Lives Reauthorization Act of 2013 (H.R. 1281)
  • Essential Health Benefits patient sign on letter
  • Rare Disease Caucus Action Alert

Recap by the Rare Disease Report at: