Click here for an explainer on the bills and action scored for the 116th Congress.

116th Congressional Scorecards by States:

Scoring Criteria and Bills:
Members were given a √ for being a Caucus member, as well as for being an author, original co-sponsor, co-sponsor, or a ‘Yes’ vote on the bills below.

Rare Disease Congressional Caucus Membership: The bipartisan Caucus is made up of 139 Representatives and 22 Senators. Points were added if the Representative or Senator was a member of the Rare Disease Congressional Caucus.

Bills Scored:
ACE Kids Act, H.R. 1226/S. 317

Ensuring Lasting Smiles Act, H.R. 1379

Lymphedema Treatment Act, H.R. 1948/S. 518

Newborn Screening Saves Lives Reauthorization Act, H.R. 2507/S. 2158

Medical Nutrition Equity Act, H.R. 2501

Creating Hope Act, H.R. 4439

This Scorecard is only a sampling of legislative votes and does not provide the full story. We recognize that Members in leadership positions refrain from co-sponsoring legislation, however their actions can greatly affect passage of rare disease bills. Poor scores are a reflection of the work the rare disease community needs to do to educate Congress on issues that are important to patients.