RDLA’s June Webinar/Conference Call


Tuesday, June 17th, 2014
11:30 a.m. to 12:30 p.m. EST


  • Rare Action Network – Lisa Phelps, NORD
  • House Committee requests a GAO report on Compassionate Access – Andy Taylor, Leg Director for Congressman McCaul
  • S. 323/H.R. 1428 (Comprehensive Immunosuppressive Drug Coverage Act of 2013) – Michelle Davis, PKD Foundation
  • CAL Undiagnosed – Taylor Gilliam, Legislative Assistant for the Congressman Carter
  • FDA Finalizes Expedited Approval Process – Julia Jenkins, The EveryLife Foundation

Updates From RDLA:

  • RDLA’s July Fly-Out Webinar Series – Andy Russell, RDLA
  • Abbey Nominations Open for the 2014 RareVoice Awards Gala
The agenda for the June RDLA meeting is open, please submit agenda items to arussell@everylifefoundation.org


Latest from RDLA:
  • Like us on Facebook and follow us on Twitter to view the latest news and action alerts on legislation affecting patients with rare diseases.
  • Click here to view presentations from this year’s Legislative Conference