Rare Disease Legislative Advocates in coordination with Rare Disease Congressional Caucus
Co-Chairs Representatives Leonard Lance (R-NJ) and G. K. Butterfield (D-NC) and
Senators Orrin Hatch (R-UT) and Amy Klobuchar (D-MN) invite you to a briefing on:
Incentivizing Innovation for Rare Disease Treatment Development
Thursday, May 18th, 2017
To learn more about the rare disease caucus briefings, please visit the Rare Disease Congressional Caucus homepage.
Ask your Members of Congress to Join the Caucus
It will only take 2 minutes: RDLA will automatically find your legislators for you. All you need to do is enter your address and add a personal note about why it’s important to you. If your legislator is already a member of the Caucus then you can send a thank you letter to your legislator instead.
Caucus Briefings
May 18th, 2017 – Incentivizing Innovation for Rare Disease Treatment Development
March 2nd, 2017 – Advancing Rare Disease Treatments in the Era of Cures and Health Care Reform
September 14th, 2016 – Strengthening Medical Innovation in America for Rare Disease Patients
May 18th, 2016 – The NIH and FDA: Vital Agencies in the Fight Against Rare Diseases
Nov. 5th, 2015 – Precision Medicine: New Frontiers for Rare Diseases
May 21st, 2015 – 21st Century Cures Initiative: Priorities for the Rare Disease Community
Feb. 26th, 2015 – Urgent Healthcare Policy Needs of the Rare Disease Community
Sept. 17th, 2014 – Implementation of Rare Disease Provisions in FDASIA
May 7th, 2014 – Access to Care & Therapies in the New Healthcare System: A Rare Disease Perspective
Feb. 28th, 2014 – Science Behind Rare Disease Policy, Feat. Special Guest Jonny Lee Miller
