In-District Lobby Days

One of the most important parts of being a rare disease advocate is building relationships with your Members of Congress, your state and local legislators, and other advocates in your community. Click below to register for RDLA’s In-District Lobby Days

For help and questions contact Andy Russell @ 415 884-0223,

 July 11th Deadline to Register to Participate  Our goal is to continue and strengthen the relationships built during Lobby Day, or build new relationships between rare disease advocates and their Members of Congress. The 2014 In-District Lobby Days also allows those who can’t make it to D.C. to have an opportunity to meet with their members. To prepare every advocate to reach out to their Members on important issues affecting the Rare Disease Community we have schedule two webinars: July 8th:  Building Relationships with Members of Congress ◦How a Fly Out works & Scheduling meetings– Advocacy Associates ◦Getting to know your Member of Congress ◦How to attend a town Hall/Campaign Event ◦Engaging your Member of Congress on Social media July 22nd: How to Have a Successful Meeting ◦Materials for you meeting ◦Talking Points – how to tell your personal story in 2 minutes ◦Issue Training –Rare Disease Congressional Caucus –America Heals Act –Following up for Success