The EveryLife Foundation and Global Genes are joining together to host a series of RARE on the Road events this summer to educate rare disease patients, caregivers and other advocates in an interactive and engaging environment.
Building on the successful regional Legislative Conferences hosted by Rare Disease Legislative Advocates, the RARE on the Road events will highlight topics from capacity building to a patient’s role in drug development, including a hands-on workshop and networking lunch. These FREE regional events will help advocates learn, grow and become independent activists for their rare disease community. The general agenda for all three events is available here.
Registration is available by clicking the links below. Each event will run from 8:30am through 4:30pm.
Saturday, May 13th, 2017: Loudermilk Conference Center, Atlanta, GA
Monday, June 5th, 2017: Kauffman Foundation Conference Center, Kansas City, MO
Saturday, July 15th, 2017: Shriners Hospital for Children, Portland, OR
A limited number of $100 travel scholarships are available for rare disease patients and caregivers who otherwise would not be able to attend. Applications are available online and are due one month before each event, except for applications for a scholarship to RARE on the Road in Atlanta which are due by April 20th.
You can help spread the word by sharing the flyer (available here) with your community.