The Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) is seeking other patient advocacy organizations to sign-on in support of H.R. 1703, the Medical Product Communications Act of 2017. The letter of support is available here and any organization interested in signing can contact Joe Murray at firstname.lastname@example.org. The deadline to sign is close of business on May 10th.
https://rareadvocates.org/wp-content/uploads/2016/04/pencil-white.png 270 800 Grant Kerber https://rareadvocates.org/wp-content/uploads/2016/05/rdla-blue-300x126.png Grant Kerber2017-05-09 12:16:192017-06-09 14:34:52Debra of America Shares Sign-On Letter for H.R. 1703, the Medical Product Communications Act of 2017