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Rare Disease Legislative Advocates in coordination with Rare Disease Congressional Caucus Co-Chairs:
Representatives Leonard Lance (R-NJ) and Joe Crowley (D-NY), will host a briefing on:
Precision Medicine: New Frontiers for Rare Diseases
Thursday, November 5th, 2015
12:00 pm – 1:00 pm (lunch provided)
Rayburn House Office Building
Room: B318
Moderator: John Crowley, Parent Advocate & CEO, Amicus Therapeautics
Matt Might, President, NGLY1.org & Associate Professor, University of Utah (confirmed)
Erynn Gordon, Director of Clinical Development, 23andMe (confirmed)
Jo Handlesman, Associate Director for Science, White House Office of Science & Technology Policy (invited)
Keith Yamamoto, Vice Chancellor for Research & Executive Vice Dean, School of Medicine, University of California San Francisco (UCSF) (invited)
Limited Seating, RSVP to attend:
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