Rare Disease Legislative Advocates & the National MPS Society in coordination with Rare Disease Congressional Caucus Co-Chairs:
Representatives Leonard Lance (R-NJ) and Joe Crowley (D-NY), will host a briefing on: Urgent Healthcare Policy Needs of the Rare Disease Community
Thursday, February 26th, 2015 12:00 noon – 1:00 pm Congressional Visitors Center (CVC) Room TBA
RSVP to Receive Updated Room Information
Lunch Provided by event sponsors AbbVie, Alexion, Raptor, & Shire
Moderator: Anthony J. Castaldo, President, US Hereditary Angioedema Association (HAEA)
Limited Access to Specialists in Private Insurance Networks, Stephanie Bozarth, National MPS Society
It will only take 2 minutes: RDLA will automatically find your legislators for you. All you need to do is enter your address and add a personal note about why it’s important to you. If your legislator is already a member of the Caucus then you can send a thank you letter to your legislator instead.