Rare Disease Legislative Advocates in coordination with Rare Disease Congressional Caucus
Co-Chairs: Representative Leonard Lance (R-NJ), Representative Joe Crowley (D-NY),
Senator Orrin Hatch (R-UT), and Senator Amy Klobuchar (D-MN) welcome you to:

Strengthening Medical Innovation in America for Rare Disease Patients

Wednesday, September 14th, 2016
12:00 pm – 1:00 pm
Cannon House Caucus Room, Washington, D.C., 20004

  • Moderator:  Vanessa Procter, Senior Director, Global Government Affairs and Alliance Development, Alexion
  •  Impact of Price Controls on Medical Innovation
    • Stephen Ezell, Vice President, Global Innovation Policy, Information Technology and Innovation Foundation (ITIF)
  • Value and Innovation Coalition
    • Joel White, President, Horizon Government Affairs
  • Starting a Biotechnology Company to Save your Child
    • Tracy Seckler, Co-founder, Charley’s Fund, Board Member, Akashi Therapeutics
  • The Rare Disease Megafund
    • Scott Hinkle, Legislative Director, Representative Juan Vargas
  • Innovation for the American Public
    • Doug Usher, Managing Partner, Purple Strategies
  • Streamlining Drug Development with 21st Century Tools
    • Isabelle Lousada, President & CEO, Amyloidosis Research Consortium