Thirty years after the emergence of the HIV/AIDS epidemic, a report co-authored by FasterCures and HCM Strategists examines how HIV/AIDS advocacy redefined patient engagement in the medical research process, and changed the drug development paradigm.
The report, Back to Basics: HIV/AIDS Advocacy as a Model for Catalyzing Change, highlights how people affected by HIV rallied together and created an advocacy movement that demanded change and got results. The milestones of this movement include transforming the research system through patient-driven clinical trials, improving the regulatory paradigm through expanded and accelerated access mechanisms, and garnering political will needed to support federal investment in research and care. Ultimately, its most significant accomplishment was transforming HIV/AIDS from a death sentence to a chronic, manageable illness as long as access to medicines following diagnosis is assured.
Wall Street Journal: Lessons From AIDS/HIV Advocacy Efforts