Last month the rare disease community nominated advocates who give rare disease patients a voice on Capitol Hill and in state government for the Rare Disease Legislative Advocates (RDLA) annual RareVoice Awards. After deliberation by the 2020 RareVoice Nominations Committee, RDLA has officially announced the finalists for the 2020 RareVoice Awards and opened registration […]
Rare Disease Legislative Advocates (RDLA), a program of the EveryLife Foundation for Rare Diseases, is pleased to announce the establishment of the RDLA Advisory Committee. The RDLA Advisory Committee will work together to ensure that everyone in the rare disease community has a voice and can make an impact on legislation and policy. The […]
The RareVoice Awards nominations for 2020 are now open. We encourage the community to nominate individuals and organizations who have gone above and beyond to become rare disease policy leaders, having passed or supported legislation for the rare disease community at the state and federal level. There is even a category for teenagers/young adults who […]
