RDLA’s July Legislative Webinar and In-Person Meeting
Wednesday, July 19th, 2017
12:00 – 1:00 pm ET
Update on Healthcare Reform and ACA Replacement, Joel White, Founder and President, Horizon Government Affairs
Reagan-Udall Foundation’s Expanded Access Navigator, June Wasser, Executive Director, Reagan-Udall Foundation
The Food and Drug Administration Reauthorization Act (FDARA) Update, Ryan Hohman, Vice President, Public Affairs, Friends of Cancer Research
Funding for Research Programs in the FY18 Budget, Sara Chang, Director of Policy and Advocacy, Research!America
Orphan Product Extensions Now, Accelerating Cures and Treatments Act (OPEN ACT), Stephanie Fischer, Senior Director of Patient Engagement and Communications, EveryLife Foundation for Rare Diseases
Upcoming Events (In-District Lobby Days and RareVoice Award Nominations), Stephanie Fischer, Senior Director of Patient Engagement and Communications, EveryLife Foundation for Rare Diseases
Once a month, RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participation does not imply support for any of the policy proposals or legislation that are discussed or promoted.
