These advocacy tools are designed to help rare disease patients, parents, caregivers and others advocate for the rare disease community. Below you will find resources to help you understand the legislative process, how to get your organization’s message out, and means for contacting your elected officials.
RDLA Tip Sheets
Other Advocacy Resources
Tools on contacting and meeting with your Members of Congress:
Build Relationships with your Representatives
Twitter handles for Senators and Governors
Tools to learn about your Legislators:
Track your legislators’ actions on rare disease issues with our Congressional Scorecard
Map of United States Congressional Districts
Find information on elections in your area
How to attend a Congressional town hall
Track your legislator’s campaign donations through Open Secrets
Tools to learn more about legislation:
Learn about the legislative process for a bill to become a law
Determine how your state ranks in state policy legislative tracker
