LEGISLATIVE ADVOCACY * POLICY NEWS * GRASSROOTS ACTION

Rare Disease Legislative Advocates is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations. By working collectively, we can amplify our many voices to ensure rare disease patients are heard in government. RDLA functions as a community clearinghouse and does not endorse legislation.

RDLA provides free resources for successful grassroots advocacy.

RDLA Advocacy Events:

• Rare Disease Week on Capitol Hill
• Rare Across America
• Legislative Conferences
• Rare Disease Congressional Caucus Briefings
• RareVoice Awards
• Monthly Conference Calls & Webinars

Resources:

• Monthly Action Alert Blasts
• Congressional Scorecards
• Online Advocacy Tools to Contact Congress
• DC Office Space
• Consulting on Legislative Strategies

Rare Disease Legislative Advocates is registered as “Unincorporated Association” in California with the EveryLife Foundation as its Agent of Service Process.

Participating in or supporting RDLA does not imply support for any of the policy proposals or legislation that are discussed at meetings or promoted on the website.

Read Dr. Kakkis’ Blog on the Origin of RDLA