Rare Disease Legislative Advocates is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations. By working collectively, we can amplify our many voices to ensure rare disease patients are heard in government. RDLA functions as a community clearinghouse and does not endorse legislation.

RDLA provides free resources for successful grassroots advocacy.

RDLA Advocacy Events:



Rare Disease Legislative Advocates is registered as “Unincorporated Association” in California with the EveryLife Foundation as its Agent of Service Process.

Participating in or supporting RDLA does not imply support for any of the policy proposals or legislation that are discussed at meetings or promoted on the website.

Read Dr. Kakkis’ Blog on the Origin of RDLA 

0 replies

Leave a Reply

Want to join the discussion?
Feel free to contribute!

Leave a Reply

Your email address will not be published. Required fields are marked *