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December 9th

Nominations to open in August 2020. Sign up for the RDLA newsletter to receive updates.

The RareVoice Awards is an annual celebration to honor advocates who give rare disease patients a voice on Capitol Hill and in state government. Patient advocates, industry executives, and Congressional and government agency staff gather to honor these outstanding advocates in the rare disease community.

Award recipients are chosen by committee from nominations received from the rare disease community. Awardees receive an “Abbey” statuette commissioned specially for the RareVoice Awards, and named for Abbey Meyers, founder of the National Organization for Rare Disorders (NORD).

2019 RareVoice Awards

For more information or sponsorship inquiries, email Carol Kennedy at ckennedy@everylifefoundation.org

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