The RDLA believes that every voice matters and that patients are the key to changing public policy. Thank you to all rare disease advocates who have made their voices heard and continue to advance policies that benefit the rare disease community.
Congratulations to all rare disease advocates nominated this year, including: Brian Baird, Catherine Bear, Sarah Bramblette, Sean Brock, Marni Cartelli, Rasheera Dopson, Lindsey Eubanks, Chifuan Head, Ellyn Kodroff, Dawn Lee-Carty, Brendan Locke, Adrienne Marks, Laura McLinn, Andrea Nelson, Tara Notrica, Kimberly Pang, Robin Powers, Tonya Price, Darlene Shelton, King Singh, Capricia Smith, Samantha Stallings, Greta Stifel, Aimee Thompson and Susan Wilson.
Thank you to the RareVoice nominations committee who performed the difficult task of selecting finalists in each category. Committee members include:
Jennifer Bernstein, Horizon Government Affairs Executive Vice President
David Eckstein, National Institutes of Health Program Director for Strategic Partnerships and Policy Development
Taylor Hittle, Congressman Markwayne Mullin Legislative Director
Cheryl Jaeger, Williams & Jensen, Principal
Angela Ramirez Holmes, Cal Rare President
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