2019 Legislative Conference Materials:

Information on legislation:

• Legislative Conference agenda
• Rare Disease Week on Capitol Hill Program
• One-pager on the Rare Disease Congressional Caucus
• One-pager on the Newborn Screening Saves Lives Act
• One-pager on funding for the NIH and FDA

Logistical information:

• List of events with dates, addresses and Metro stops
• Map of event locations in DC
• DC Metro Map
• Map of Reagan Center

Additional resources:

• Congressional scorecards 
• Informational Webinar on Rare Disease Week on Capitol Hill 2019 on December 12, 2018
• Deep Dive Webinar on Rare Disease Week on February 14, 2019