On Thursday, March 3rd, 2016, Rare Disease Legislative Advocates (RDLA) hosted its first bicameral briefing for the Rare Disease Congressional Caucus. RDLA was joined by Representative Leonard Lance (R-NJ), Representative Joe Crowley (D-NY), Senator Orrin Hatch (R-UT), and Senator Amy Klobuchar (D-MN) for the briefing, titled “The Rare Disease Ecosystem: Fostering Patient Engagement & Driving Biomedical Innovation”. Below are videos of Congressional remarks and individual presentations. The agenda for the event is available here.
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