Countdown to Rare Disease Week on Capitol Hill 2020

February 25, 2020


Take Action


Registration Now Open for Rare Disease Week on Capitol Hill 2020

You are invited to join more than 800 advocates for Rare Disease…

Rare Disease Week on Capitol Hill 2020

Rare Disease Legislative Advocates (RDLA), a program of the EveryLife…

Rare Disease Legislative Advocates Honor Leaders Who Inspire Transformational Public Policy Solutions

(Washington, D.C., December 5, 2019) Rare Disease Legislative…

About RDLA

Rare Disease Legislative Advocates is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations. RDLA is committed to growing the patient advocacy community and working collectively, thereby amplifying the patient voice to be heard by local, state, and federal policy makers.

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