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Shannon vonFelden2019-08-19 16:16:362019-08-19 16:16:36Urge Legislators to Attend Rare Disease Caucus Briefing on September 11th
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Shannon vonFelden2019-06-28 09:55:462019-06-28 09:59:01Rare New England asks Massachusetts Advocates to Contact Legislators to Cosponsor H.1934 and SD.2264 to Create A Massachusetts Rare Disease Advisory Council
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Shannon vonFelden2019-06-27 15:40:472019-06-28 09:58:06NFED Asks Advocates to Contact Congress to Cosponsor the Ensuring Lasting Smiles Act
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Grant Kerber2019-12-05 11:11:252019-12-06 14:28:15Rare Disease Legislative Advocates Honor Leaders Who Inspire Transformational Public Policy Solutions
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Shannon vonFelden2019-10-17 09:17:262019-10-17 09:40:142019 RareVoice Awards Finalists Announced
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Shannon vonFelden2019-10-02 09:26:392019-10-02 09:26:39Congratulations Advocates on Over 300 Rare Across America Meetings!
Rare Disease Legislative Advocates is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations. RDLA is committed to growing the patient advocacy community and working collectively, thereby amplifying the patient voice to be heard by local, state, and federal policy makers.
Were you there? Check out the photos captured during RareVoice Awards at Arena Stage last week & the videos played… https://t.co/COATCO7SqD
19 hours ago
Got Questions? We've got answers. Rare Disease Week on Capitol Hill 2020 Informational Webinar is Thursday, Dec 12t… https://t.co/AWIuIqobRe
1 day ago
