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Shannon vonFelden2019-06-28 09:55:462019-06-28 09:59:01Rare New England asks Massachusetts Advocates to Contact Legislators to Cosponsor H.1934 and SD.2264 to Create A Massachusetts Rare Disease Advisory CouncilTake Action
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Shannon vonFelden2019-06-28 09:55:462019-06-28 09:59:01Rare New England asks Massachusetts Advocates to Contact Legislators to Cosponsor H.1934 and SD.2264 to Create A Massachusetts Rare Disease Advisory Council
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Shannon vonFelden2019-06-27 15:40:472019-06-28 09:58:06NFED Asks Advocates to Contact Congress to Cosponsor the Ensuring Lasting Smiles Act
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Shannon vonFelden2019-06-18 15:50:482019-06-18 15:50:48Council for Affordable Health Coverage asks organizations to sign onto Senate Finance Committee LetterRECENT NEWS
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Grant Kerber2019-04-14 22:39:482019-04-15 13:02:08RDLA Announces Rebrand of In-District Lobby Days to Rare Across America
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Shannon vonFelden2019-03-08 15:08:082019-03-11 12:45:27Biggest Rare Disease Week on Capitol Hill Ever!
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Shannon vonFelden2019-02-19 15:57:002019-02-19 15:57:21Five Ways YOU Can Participate in Rare Disease Week on Capitol Hill Remotely
About RDLA
Rare Disease Legislative Advocates is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations. RDLA is committed to growing the patient advocacy community and working collectively, thereby amplifying the patient voice to be heard by local, state, and federal policy makers.
Latest Tweets
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#RareAcrossAmerica this week: we love seeing the impact advocates are making as they meet w/ their Members of Congr… https://t.co/WvXZthzdJA
11 hours ago
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RT @sfcomms: Big thanks to Amy from @RepHuffman office for meeting with Adri and me to discuss ways to help #RareDisease constit… https://t.co/iT3mPcd4ct
19 hours ago
