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Shannon vonFelden2019-01-18 15:53:262019-01-18 16:15:20Research!America Asks Advocates to Contact Congress to Complete FY19 AppropriationsTake Action
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Shannon vonFelden2019-01-18 15:53:262019-01-18 16:15:20Research!America Asks Advocates to Contact Congress to Complete FY19 Appropriations
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Shannon vonFelden2018-11-01 12:58:422018-11-07 09:04:35Sick Cells and the Sickle Cell Disease Association of America Asks Advocates to Write Their Representatives to Pass S. 2465 in the House
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Shannon vonFelden2018-10-17 15:51:502018-10-17 15:55:58The National Foundation for Ectodermal Dysplasias Asks Advocates to Contact Congress to Support the Ensuring Lasting Smiles ActRECENT NEWS
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Grant Kerber2019-04-14 22:39:482019-04-15 13:02:08RDLA Announces Rebrand of In-District Lobby Days to Rare Across America
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Shannon vonFelden2019-03-08 15:08:082019-03-11 12:45:27Biggest Rare Disease Week on Capitol Hill Ever!
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Shannon vonFelden2019-02-19 15:57:002019-02-19 15:57:21Five Ways YOU Can Participate in Rare Disease Week on Capitol Hill Remotely
About RDLA
Rare Disease Legislative Advocates is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations. By growing the patient advocacy community and working collectively, we can amplify our many voices to ensure that rare disease patients are heard in state and federal government.
Latest Tweets
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RDLA ANNOUNCES REBRAND OF IN-DISTRICT LOBBY DAYS TO RARE ACROSS AMERICA. Every voice, in every district, matters! M… https://t.co/GByFwr6pog
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JOIN US TOMORROW!!! RDLA Webinar and In-Person Meeting tomorrow, Thursday, April 11th at noon EST. Discussion topic… https://t.co/unh0TV9fyu
2 weeks ago
