https://rareadvocates.org/wp-content/uploads/2016/04/in-person-white.png
270
800
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2016/05/rdla-blue-300x126.png
Shannon vonFelden2019-08-19 16:16:362019-08-19 16:16:36Urge Legislators to Attend Rare Disease Caucus Briefing on September 11th
https://rareadvocates.org/wp-content/uploads/2016/04/email-white.png
270
800
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2016/05/rdla-blue-300x126.png
Shannon vonFelden2019-06-28 09:55:462019-06-28 09:59:01Rare New England asks Massachusetts Advocates to Contact Legislators to Cosponsor H.1934 and SD.2264 to Create A Massachusetts Rare Disease Advisory Council
https://rareadvocates.org/wp-content/uploads/2016/04/email-white.png
270
800
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2016/05/rdla-blue-300x126.png
Shannon vonFelden2019-06-27 15:40:472019-06-28 09:58:06NFED Asks Advocates to Contact Congress to Cosponsor the Ensuring Lasting Smiles Act
https://rareadvocates.org/wp-content/uploads/2019/10/RareVoiceCollage-2019.jpg
6000
6000
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2016/05/rdla-blue-300x126.png
Shannon vonFelden2019-10-17 09:17:262019-10-17 09:40:142019 RareVoice Awards Finalists Announced
https://rareadvocates.org/wp-content/uploads/2019/10/RAA_Wrapup-Email-Impage-10-2-19.png
756
945
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2016/05/rdla-blue-300x126.png
Shannon vonFelden2019-10-02 09:26:392019-10-02 09:26:39Congratulations Advocates on Over 300 Rare Across America Meetings!
https://rareadvocates.org/wp-content/uploads/2019/10/RDWCH-Travel-Stipends-graphic_box.png
1080
1080
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2016/05/rdla-blue-300x126.png
Shannon vonFelden2019-10-01 11:31:142019-10-01 11:31:14Travel Stipend Application Open for Rare Disease Week on Capitol Hill 2020
Rare Disease Legislative Advocates is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations. RDLA is committed to growing the patient advocacy community and working collectively, thereby amplifying the patient voice to be heard by local, state, and federal policy makers.
RDLA IS SEEKING AN INTERN TO JOIN THE TEAM THIS FALL! Part-time, paid internship based in Washington, DC available… https://t.co/V0oPEQcY4n
9 hours ago
BREAKING NEWS: The 2019 #RareVoice Award Finalists have been announced! THANK YOU for nominating these outstanding… https://t.co/NRwnddVChZ
18 hours ago
