Countdown to Rare Disease Week on Capitol Hill 2020

February 25, 2020


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Rare Disease Legislative Advocates Honor Leaders Who Inspire Transformational Public Policy Solutions

(Washington, D.C., December 5, 2019) Rare Disease Legislative…

2019 RareVoice Awards Finalists Announced

The Rare Disease Legislative Advocates (RDLA) today announced…

Congratulations Advocates on Over 300 Rare Across America Meetings!

Thank you to the nearly 600 rare disease advocates who participated…

About RDLA

Rare Disease Legislative Advocates is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations. RDLA is committed to growing the patient advocacy community and working collectively, thereby amplifying the patient voice to be heard by local, state, and federal policy makers.

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