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Shannon vonFelden2019-08-19 16:16:362019-08-19 16:16:36Urge Legislators to Attend Rare Disease Caucus Briefing on September 11th
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Shannon vonFelden2019-06-28 09:55:462019-06-28 09:59:01Rare New England asks Massachusetts Advocates to Contact Legislators to Cosponsor H.1934 and SD.2264 to Create A Massachusetts Rare Disease Advisory Council
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Shannon vonFelden2019-06-27 15:40:472019-06-28 09:58:06NFED Asks Advocates to Contact Congress to Cosponsor the Ensuring Lasting Smiles Act
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Shannon vonFelden2019-08-27 08:57:452019-08-27 13:02:48RareVoice Awards Nominations Closing Soon
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Grant Kerber2019-04-14 22:39:482019-04-15 13:02:08RDLA Announces Rebrand of In-District Lobby Days to Rare Across America
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Shannon vonFelden2019-03-08 15:08:082019-03-11 12:45:27Biggest Rare Disease Week on Capitol Hill Ever!
Rare Disease Legislative Advocates is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations. RDLA is committed to growing the patient advocacy community and working collectively, thereby amplifying the patient voice to be heard by local, state, and federal policy makers.
#RareGiving Event Sponsorship applications due by October 31st! Rare Giving supports conferences that educate audie… https://t.co/T264EXIZz4
4 days ago
Special Drug Pricing Webinar today 12-1pm! In response to questions & requests from the #raredisease community to b… https://t.co/q9hu22MlX3
6 days ago
