https://rareadvocates.org/wp-content/uploads/2016/04/in-person-white.png
270
800
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2020/01/RDLA-logo-with-tag-white-rev.png
Shannon vonFelden2019-08-19 16:16:362019-08-19 16:16:36Urge Legislators to Attend Rare Disease Caucus Briefing on September 11th
https://rareadvocates.org/wp-content/uploads/2016/04/email-white.png
270
800
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2020/01/RDLA-logo-with-tag-white-rev.png
Shannon vonFelden2019-06-28 09:55:462019-06-28 09:59:01Rare New England asks Massachusetts Advocates to Contact Legislators to Cosponsor H.1934 and SD.2264 to Create A Massachusetts Rare Disease Advisory Council
https://rareadvocates.org/wp-content/uploads/2016/04/email-white.png
270
800
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2020/01/RDLA-logo-with-tag-white-rev.png
Shannon vonFelden2019-06-27 15:40:472019-06-28 09:58:06NFED Asks Advocates to Contact Congress to Cosponsor the Ensuring Lasting Smiles Act
https://rareadvocates.org/wp-content/uploads/2020/05/RAA-2020-Banner-e1588603090582.png
750
1056
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2020/01/RDLA-logo-with-tag-white-rev.png
Shannon vonFelden2020-05-04 10:38:462020-05-04 10:38:46Register for Rare Across America
https://rareadvocates.org/wp-content/uploads/2020/03/Group-Photo-2020_Reagan-Center_withsigns_thumb.jpg
120
144
Grant Kerber
https://rareadvocates.org/wp-content/uploads/2020/01/RDLA-logo-with-tag-white-rev.png
Grant Kerber2020-03-11 12:16:122020-03-11 13:07:11900 Patients and Families Attend Rare Disease Week on Capitol Hill 2020
https://rareadvocates.org/wp-content/uploads/2016/05/Rare-Disease-Week-Logo-e1476291869228.png
120
144
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2020/01/RDLA-logo-with-tag-white-rev.png
Shannon vonFelden2019-12-23 14:22:432019-12-23 14:22:43Rare Disease Week on Capitol Hill 2020
Rare Disease Legislative Advocates is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations. RDLA is committed to growing the patient advocacy community and working collectively, thereby amplifying the patient voice to be heard by local, state, and federal policy makers.
On May 21st at 12:00 pm, join us for the RDLA Legislative Webinar. These webinars help facilitate open dialogue abo… https://t.co/0Pv7NvcawG
6 days ago
No advocacy experience is needed to be a part of #RareAcrossAmerica 2020. The RDLA team organizes meetings for rare… https://t.co/j4tbraigDe
2 weeks ago
