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Shannon vonFelden
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Shannon vonFelden2019-06-18 15:50:482019-06-18 15:50:48Council for Affordable Health Coverage asks organizations to sign onto Senate Finance Committee LetterTake Action
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Shannon vonFelden2019-06-18 15:50:482019-06-18 15:50:48Council for Affordable Health Coverage asks organizations to sign onto Senate Finance Committee Letter
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Shannon vonFelden2019-05-28 10:08:442019-05-28 10:24:10The Lymphedema Advocacy Group Asks Advocates to Contact Congress to Support the Lymphedema Treatment Act, S.518/H.R.1948
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Andrew Hughey
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Andrew Hughey2019-05-23 12:50:532019-05-23 20:20:27National PKU Alliance Asks Advocates to Contact Representatives to Cosponsor the Medical Nutrition Equity Act, H.R. 2105RECENT NEWS
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Grant Kerber2019-04-14 22:39:482019-04-15 13:02:08RDLA Announces Rebrand of In-District Lobby Days to Rare Across America
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Shannon vonFelden2019-03-08 15:08:082019-03-11 12:45:27Biggest Rare Disease Week on Capitol Hill Ever!
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Shannon vonFelden2019-02-19 15:57:002019-02-19 15:57:21Five Ways YOU Can Participate in Rare Disease Week on Capitol Hill Remotely
About RDLA
Rare Disease Legislative Advocates is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations. RDLA is committed to growing the patient advocacy community and working collectively, thereby amplifying the patient voice to be heard by local, state, and federal policy makers.
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Attention Advocates: tom. is a BIG day for Newborn Screening Saves Lives Reauth. Act of2019 (HR 2507)!@EnergyCommer… https://t.co/uHIuxD8gi0
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JULY 3rd is the last day to register for Rare Across America: https://t.co/RDOYDJsDbG https://t.co/eSJ34TMmNr
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