https://rareadvocates.org/wp-content/uploads/2016/04/in-person-white.png
270
800
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2020/01/RDLA-logo-with-tag-white-rev.png
Shannon vonFelden2019-08-19 16:16:362019-08-19 16:16:36Urge Legislators to Attend Rare Disease Caucus Briefing on September 11th
https://rareadvocates.org/wp-content/uploads/2016/04/email-white.png
270
800
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2020/01/RDLA-logo-with-tag-white-rev.png
Shannon vonFelden2019-06-28 09:55:462019-06-28 09:59:01Rare New England asks Massachusetts Advocates to Contact Legislators to Cosponsor H.1934 and SD.2264 to Create A Massachusetts Rare Disease Advisory Council
https://rareadvocates.org/wp-content/uploads/2016/04/email-white.png
270
800
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2020/01/RDLA-logo-with-tag-white-rev.png
Shannon vonFelden2019-06-27 15:40:472019-06-28 09:58:06NFED Asks Advocates to Contact Congress to Cosponsor the Ensuring Lasting Smiles Act
https://rareadvocates.org/wp-content/uploads/2020/03/Group-Photo-2020_Reagan-Center_withsigns_thumb.jpg
120
144
Grant Kerber
https://rareadvocates.org/wp-content/uploads/2020/01/RDLA-logo-with-tag-white-rev.png
Grant Kerber2020-03-11 12:16:122020-03-11 13:07:11900 Patients and Families Attend Rare Disease Week on Capitol Hill 2020
https://rareadvocates.org/wp-content/uploads/2016/05/Rare-Disease-Week-Logo-e1476291869228.png
120
144
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2020/01/RDLA-logo-with-tag-white-rev.png
Shannon vonFelden2020-01-03 14:28:232020-01-03 14:28:23Registration Now Open for Rare Disease Week on Capitol Hill 2020
https://rareadvocates.org/wp-content/uploads/2016/05/Rare-Disease-Week-Logo-e1476291869228.png
120
144
Shannon vonFelden
https://rareadvocates.org/wp-content/uploads/2020/01/RDLA-logo-with-tag-white-rev.png
Shannon vonFelden2019-12-23 14:22:432019-12-23 14:22:43Rare Disease Week on Capitol Hill 2020
Rare Disease Legislative Advocates is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations. RDLA is committed to growing the patient advocacy community and working collectively, thereby amplifying the patient voice to be heard by local, state, and federal policy makers.
RT @NarcolepsyNtwrk: @joe_ogiba, one of our narcolepsy advocates, shared his Rare Disease Week experience with his local paper,… https://t.co/1Dg2DCXBm3
6 days ago
Thank you for joining s for #RareDC2020 and for sharing your experience! https://t.co/8eBeDCsepZ
6 days ago
