These half-day conferences will include discussions with federal elected officials, academics, patient advocates and other rare disease stakeholders. They will also provide attendees with the opportunity to network and learn from others in the rare disease community. Lunch will be provided, and there is no cost to attend. The regional Legislative Conferences will help patients, caregivers and others in the rare community prepare for In-District Lobby Days during the summer Congressional recess (July 18th through September 5th). In-District Lobby Days will provide you with the opportunity to sit and talk with your Members of Congress about your needs and challenges, and explain what they can do to help you and your community.
If you missed it, don’t worry! You can watch it online at your convenience. This webinar will
- To register for the Northeast Legislative Conference in Boston on June 28th, please click HERE.
- To register for the Midwest Legislative Conference in Chicago on June 30th, please click HERE.
- To register for the West Coast Legislative Conference in Seattle on June 30th, please click HERE.
- To register for In-District Lobby Days, please click HERE.