On January 23rd, President Trump instituted an immediate hiring freeze that would affect many federal agencies including the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). Unfortunately, this freeze could significantly hamper research into rare disease treatments as well as the review and approval of new medicines. The EveryLife Foundation for Rare Diseases is asking patient organizations to sign-on to a letter describing the critical importance of the NIH and FDA along with their ability to hire new staff.
The Foundation is accepting signatures until Friday, February 24th, so sign on today! Your voice provides needed perspective on how the hiring freeze could harm rare disease patients. Share this action alert with your networks and on social media.