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EveryLife Foundation Urges Advocates to Ask Their Members of Congress to Support the OPEN ACT

The EveryLife Foundation asks you to take action to support the Orphan Product Extensions Now, Accelerating Cures and Treatments (OPEN ACT, H.R. 1223 / S. 1509). The OPEN ACT could bring hundreds of safe, effective, and affordable medicines to rare disease patients within the next several years by incentivizing drug makers to repurpose therapies for the treatment of life-threatening rare diseases. EveryLife Foundation, the National Organization for Rare Disorders (NORD), Global Genes, and Genetic Alliance are among the more than 220 patient organizations support this bipartisan legislation.

For further information on the OPEN ACT, click here.