Join us in Washington DC: Rare Disease Day – Week Feb. 25th – 28th

You are invited to join RDLA and 200 rare disease advocates in Washington, DC for Rare Disease Day (Week), February 25 – 28, 2013.  Below is an overview of the events.

Tuesday, February 25th – Thursday Feb. 27th:  Rare Disease Legislative Conference & Lobby Days
Tuesday:  Legislative Conference @ the National Press Club
Wednesday:  Lobby Day Breakfast & Hill Meetings
Thursday:  State Delegation Hill Meetings **Optional Day
Click Here to watch the video presentations from last year’s Legislative Conference

Please make sure to register separately for the following events:

Tuesday, February 25th

5:30 pm – 9:30 pm RDLA’s 4th Annual Rare Disease Day Documentary Screening & Cocktail Reception
Featuring the new HBO Progeria documentary, Life According to Sam
Carnegie Institution of Science, 1530 P Street Northwest, Washington DC (near Dupont Circle)

Thursday, February 27th:

8:00 – 10:30 am  EveryLife Foundation for Rare Diseases Workshop on FDA Regulatory Law & Policy for Patient Advocates
Best practices to work with Industry & FDA on expanded access, compassionate use & emergency IND’s
Embassy of Greece, 2217 Massachusetts Ave NW, Washington DC 20008 (near Dupont Circle)

12:00 pm – 1:30 pm Rare Disease Congressional Caucus Briefing, Capitol Visitors Center, Room: HVC – 201

5:00 pm – 8:00 pm Global Gene’s Rare Disease Networking Reception

Friday, February 28th:

RDD@NIH Rare Disease Day at the National Institutes of Health
NIH Campus, Natcher Auditorium (Building 45), Bethesda, Maryland (10 miles from DC)

 Join our Facebook event to meet other patient advocates before you arrive!

All events are free and open to the public, you must register separately for every event.