Save the Date for Rare Disease Week on Capitol Hill: February 29 – March 3rd

Please pull out your calendars and save the date for RDLA’s Rare Disease Week on Capitol Hill 2016!

2016 Rare Disease Week on Capitol Hill Schedule:

  • Monday, February 29th: Rare Disease Day at the NIH
  • Monday, February 29th: Rare Disease Documentary Screening & Cocktail Reception
  • Tuesday, March 1st: Legislative Conference at FHI 360
  • Wednesday, March 2nd: Lobby Day Breakfast & Hill Meetings
  • Thursday, March 3rd: Congressional Caucus Briefing
  • Thursday, March 3rd: Rare Artist Reception

If you are interested in attending Rare Disease Week on Capitol Hill next year and would like to apply for a travel scholarship, click here to apply. There is a limit of one travel stipend per family, and three travel stipends per state.

Click here to see videos and pictures from Rare Disease Week 2015