Registration Now Open for Rare Disease Week on Capitol Hill

Join fellow rare disease patients, caregivers and other advocates from across the country at Rare Disease Week on Capitol Hill from February 27th through March 2nd, 2017. This is an opportunity for YOU to help educate the new Congress and shape healthcare policy to better meet the needs of the rare disease community.

All of the events are free for rare disease advocates, but advance registration is required for each.

Monday, February 27th, 8:30am-4pm: Rare Disease Day at the National Institutes of Health (NIH)
You can attend in-person or watch via livecast, and registration is available on the NIH website.

Monday, February 27th, 5:30-9:30pm: Cocktail Reception and Rare Disease Documentary Screening presented by Vertex featuring Up for Air at the Naval Heritage Center
Registration is available HERE.

Tuesday, February 28th, 9am-5pm: Legislative Conference presented by Horizon Pharma at FHI 360. Registration closed on February 12th.

Wednesday, March 1st, 7:30-8:30am: Lobby Day Breakfast at Hyatt Regency on Capitol Hill. Registration is now closed.

Wednesday, March 1st, 9am-5pm: Lobby Day Meetings with Members of Congress on Capitol Hill. Registration closed on February 12th.

Wednesday, March 1st, 5-7pm: Rare Artist Reception at the Kennedy Caucus Room of the Russell Senate Office Building
Registration is available HERE.

Thursday, March 2nd, 12-1:30pm: Rare Disease Congressional Caucus Briefing in Room 902 of the Hart Senate Office Building
Registration is available HERE.

For more information on Rare Disease Week on Capitol Hill including the introductory webinar held last month and a link to register for the next webinar on February 8th, please visit http://rareadvocates.org/rdw/.

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